NASEM: Integrating the Patient and Caregiver Voice into Serious Illness Care

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On December 15, 2016, the National Academies of Sciences Engineering and Medicine's (NASEM) Roundtable on Quality Care for People with Serious Illness hosted a public workshop examining the challenges and opportunities associated with identifying and integrating the voice of seriously ill patients of all ages and their caregivers into person-centered care throughout the continuum of care.

The workshop featured invited presentations and panel discussions on topics including:

  • Patient-caregiver-clinician serious illness care experiences from both the pediatric and adult perspective

  • Challenges and successes addressing socio-cultural differences in care for adults and children with serious illness

  • Integrating person-centered care principles across the age spectrum, disciplines and diagnoses

  • Engaging and supporting patients, families and caregivers to communicate their needs, values and preferences with their care team.

  • The workshop was presented as a live webcast on the National Academy webpage

Supportive Care Coalition