NASEM: Integrating the Patient and Caregiver Voice into Serious Illness Care
On December 15, 2016, the National Academies of Sciences Engineering and Medicine's (NASEM) Roundtable on Quality Care for People with Serious Illness hosted a public workshop examining the challenges and opportunities associated with identifying and integrating the voice of seriously ill patients of all ages and their caregivers into person-centered care throughout the continuum of care.
The workshop featured invited presentations and panel discussions on topics including:
- Patient-caregiver-clinician serious illness care experiences from both the pediatric and adult perspective
- Challenges and successes addressing socio-cultural differences in care for adults and children with serious illness
- Integrating person-centered care principles across the age spectrum, disciplines and diagnoses
- Engaging and supporting patients, families and caregivers to communicate their needs, values and preferences with their care team.